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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Is The Prognosis In Sporadic Porphyria Cutanea Tarda And How To Manage It?

I have PCT; sporadic, tested at mayo clinic, being treated in Minot ND have had 10 phlebs, ferritin was at 153 before the 10th phleb, I am seeing a blood specialist, I ask him questions about arthritis and skip problems and he will not answer any questions and gets offended like I am a idiot, his answer too arthritis was that pct does not help cause arthritis,I asked him how long he has known about pct and hjs answer is that he has been a doctor for 25 years, that was his answer, who do I see in North Dakota that can answer my questions, my PA did not even know what it was, I went to a arthritis specialist with all the blisters on my swollen hands in Minot ND and he knows nothing about pct, i asked the blood specialist if he did a liver function test before the 10th phleb and he says maybe we will on the next phleb,am I being treated and tested properly, I just want some forsight into how bad my liver is or what damage they think I may have to my body, I started having symtoms 3 years ago and advocated for myself until they finally sent me to a dermatologist and he figures out what I have immediatly, any suggestions?
Tue, 11 Feb 2014
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General & Family Physician 's  Response
Hi, thank you for posting.

I read your query very carefully and I understood your problem. I think that I can help you.

I think that Porphyria cutanea tarda(PCT) is an almost treated disease.
If the treatment is correct, the prognosis is usually excellent.

You need to follow strictly phlebotomia program.
You should avoid alcoholic drinks.
Avoid high ferritin foods.
Avoid exposure to sunlight.
Take needed medicines.

If you follow these precautions you will have a good health condition.

Dr. Behar.
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What Is The Prognosis In Sporadic Porphyria Cutanea Tarda And How To Manage It?

Hi, thank you for posting. I read your query very carefully and I understood your problem. I think that I can help you. I think that Porphyria cutanea tarda(PCT) is an almost treated disease. If the treatment is correct, the prognosis is usually excellent. You need to follow strictly phlebotomia program. You should avoid alcoholic drinks. Avoid high ferritin foods. Avoid exposure to sunlight. Take needed medicines. If you follow these precautions you will have a good health condition. Dr. Behar.