Hi, My son has developed Status Epilepticus, His first episode was Dec 23rd,2012 and lasted over 90 min. None of the anti-seizure medicine would even slow him down, but he was turning blue within 30-40 seconds, was very frothy with bubbly tenacious saliva. I thought he was going to die in my arms before the ambulance would get here. He has had 4-5 episodes since then, each time needing to be put into a medically induced coma with a ventilator and spending 3-6 days in ICU. He was first put on Keppra 1500mg daily, that made him mean, very mean, he was then switched to Dilantin 100mg 3x/day and Klonopin 1mg 2x/day. I should state that prior to adding the Klonopin Nick had a seizure with his Dilantin level at 16. Other than EEG s and MRI s there has been no other testing. Nick has no aura. Should I seek a second opinion to see if another Neurologist would do more testing. He I just turned 20 and his Neurologist has him s totally incapacitated until seizure-free for two years. I am afraid to leave him alone for any period of time, because of cyanosis that comes on so quickly. He is also ordered a rectal injection of 10mg Valium gel prior to ambulance arriving Am I being over-bearing? I truly believed he was going to die on his first two episodes?