hi my name is Karen I have a son with this he wore a back brace for 2yrs then they found his chest caved in leaving only 5mil between hart lung and airway as a result of this like had a nuss bar prosecutor done bar was in for 12 months then taken out Luke is in constant pain only out of bed about 3hrs a day and is so under weight we ilve in the country and Luke is to old for the children's hospital so we cant get help from them now his 19 please is there a good dr or any help out there for us as in pain management ect