Brief Answer: Yes Detailed Answer: I am sorry to hear about the tendency your body has to develop pheochromocytomas/paragangliomas. They are indeed rare tumors. Orthostatic hypotension is medical term used to describe the falling of blood pressure when one rises from the lying down to the sitting/standing position or from sitting to standing position. This is very well known to be associated with these tumors. So it clearly explains the staggering sensation you feel. Because low blood pressure can cause dizziness or light headedness. the body may perceive that as a sense of incoordination too. The jerking movements have not been described to my knowledge. However, when a 'spell' occurs, there are various symptoms that can occur. The spell refers to an episode of sudden surge in 'adrenaline' type of hormones in the bloodstream when released from the tumors. They manifest in the form of classic symptoms such as chest pain,shortness of breath, palpitations (heart racing), sweating and a sense of impending doom. So difficulty in speaking can be a part of such an episode.

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Brief Answer: Follow up Detailed Answer: Looks like I have answered you elsewhere too. I am not aware of any published medical literature that describes the staggering sensation nor the movement disorders that you are experiencing. However, pheochromocytomas have myriad presentations and they can be so varied and peculiar they are hard to dissect out. That being said, these appear to be compelling neurological symptoms. I strongly suggest you consult a neurologist in person to seek a diagnosis for these complaints. It may well be from another unrelated condition, that can be potentially treatable. For example, pheochromocytoma can cause diabetes which if untreated and poorly controlled can damage the nerves and result in problems of the kind you are reporting.

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