
Suggest Treatment For Risperdal Withdrawal Symptoms

last few answers I got was a month after he stops but it has been over a month and he is still doing really bad
Psychiatric medication needs to be given after psychiatric evaluation.
Detailed Answer:
Thanks for asking on HealthcareMagic.
Let me assure that I am a child specialist and have expertise reasonable enough to answer your query. Risperdal (Risperidone) withdrawal symptoms may go on for 3 months or more. To be able to comment properly I would need to know why risperidone had been given and why it was withdrawn. Perhaps the weaning off was not gradual enough. As of now your child might need small doses of risperidone. A proper neurological as well as psychiatric evaluation needs to be done. Unfortunately that is beyond the scope of this online discussion and you would need to see a psychiatrist and possibly a neurologist as well for the same.
I would be glad to help you out. Feel free to write back.
Regards


So my son at the age 3 and half was diagnosed my a mental health professional with ADHD, Sensory Processing Disorder and speech delay. Then at 5 was diagnosed on the Autism Spectrum with oppositional behavior disorder that is why he was put on risperidal. ( he also had a very rare deletion that only 1% of the entire worlds population is a carrrier it has nothing to do with his disorder byt Dr. XXXXXXX Fiengold I am sure you have heard of him wanted to see him asap because he never saw anyone with this even as a carrier. He examined him for hour and half said sensory processing disorder is not a true disorder and said to us you know your son is NOT on the spectrum right? We were like he was diagnosed in May 2014, and he said I would NEVER put this child on the spectrum and I am the leading doctor on autism in the country- just a side note that was interesting) Back in October 2013 he was started on .25mg 2x a day then as behavior got worse they increased and increased until Dec 2015 he was increased to 1mg 3x a day ( school said this is when he got really bad) still not doing better it was almost making him worse. In October 2014 we bought a new house and he changed overnight all these horrible behaviors came out, OCD horrible, running back and forth, extreme aggression, peeing all the time, not talking anymore, doing horrible in school and so much more so our team of doctors, PCP, Psychiatrist and Neurologist all agreed it was a medical casuse not the Autism so they did about 200K in medical testing, MRI's, Medicine increases, Seizure studies, genetic two testing, every blood work under the sun except strep. So when he was in hospital for seizure test my friend came to visit and was like he doesn't look like autism he looks clinical ask for a strep blood ASO test before you leave. Well we did and I got the call a few nights later the nurse on the floor was like your sons ASO titers are 800. She said look into Autoimmune enchillitas casused by strep. All his doctors said they have treated Autoimmune enchillitas and my son did not have it well. Fast forward working with top advocate for Autoimmune enchillitas casued by strep she gets me into see the BEST doctor in three days you can only see him with a referral from advocate and a 2 hour screening before hand) He only treats 40 patients won't take a patient unless they are 100 percent Autoimmune enchillitas caused by strep. The minute he saw our son he couldn't believe what a clear cut case of Autoimmune enchillitas my son had. He has had non symptomatic rectal strep since he was 3 and half ( always had a rash on his bottom) two worst drugs for Autoimmune enchillitas caused by strep is Risperidal ( made him worse entire time thats why they kept increasing him on it to control the behaviors) and ADHD stimulant. Took him immediatly off the stimulant and he had the best week at school he had all year most attentive he had been. Now comes the tough part weaning him off the risperidal. We weaned him down approx for 10 weeks very slowly now remember he has been off for 5 weeks now. He is still on small dose of clonodine but we are going to wait to wean him, once he is done detoxing from risperidal. He is also on treatment this whole time for the Autoimmune enchillitas and we have seen improvements only pees 3-4 times a day (was 20) talking more, eye contact and other improvements, but the detoxing of the risperidal is so BAD it's absolutely horrible, aggresses towards us (bites, hits, scratches), school staff, scripts all the time, hallucinates , insomnia, constipation, anxiety, concentration problems, confusion, crying spells , delusions, extreme hyper activity, Headaches ( takes Aleve as part of his Autoimmune enchillitas treatment) irritability, mood swings.. It's horrible we really thought it would be out of his system by now so we need an expert/another opinion you to confirm this is all due to the detoxing and how much longer (approx) we have to wait? We will never put him on a psychiatric medication again so that is out of the question. Any natural supplements that may help in the meantime we are open to anything to make our lives somewhat easier in the meantime. Very desperate.
Please help even it's just to conform this is the detox and there is a light at the end of the tunnel? Is this normal? it's so confusing. I will say I was mistakenly put on zyprexa and it took me about 8 months to feel better and I know that's the sister drug to risperidal please tell me it won't take that long for him?
I hope this is all confidential. I just need an expert on this at this time?
Thank you soooo much!!! What is tyour background in Child Psychiatry/ Childrens Psychiatric medications? Risperidal isn't even FDA approved to give to children with autism it's used off lable. It should only be given to adults with scitzoprenia.
Thanks so much
XXXXX
Here is his weaning schedule he went through:
He saw new doctor 2nd week in March started the weaning of 3mg a day righ away down to 2mg a day (took out afternoon dose) for 10 days. The 1mg and .5 for 10 days. Then .5 and .5 for 10 days, the .5mg for 10 days and done as of 5 weeks ago I asked my psychiatrist who is an expert on medications just doesn't treat children and said that would have been the same schedule she would have done.
I do not find justification of trying to eliminate the drug.
Detailed Answer:
Thanks for the elaborate clarifications. The chromosomal deletion, the encephalitis as well as certain other matters have complicated the situation. Going by the description your child could well have ADHD, Autism Spectrum Disorder (ASD), OCD along with neurological complication. The following links would help you to detect whether your child is likely to have ADHD and ASD:
http://www.additudemag.com/adhd-web/article/554.html
https://www.autismspeaks.org/what-autism/diagnosis/mchat
Cognitive behavioral therapy (CBT) and psychotherapy (talking therapy) would be very important for your child. Group therapy sessions would also have a valuable role to play. It does not matter what ailment your child has, mainstreaming has to be done and CBT and psychotherapy would be invaluable in this regard. I would not really have bothered for medical testing for specification of diagnosis.
Risperidone is a good medicine and has a number of applications which can be just a matter of dose variation. I understand it might be off-label use but there are scientific studies to back up the same. I feel that in the case of your child perhaps withdrawing it was not a good idea. However, I am not his primary psychiatrist and hence would not have the right to comment. Had I been treating the patient, I would perhaps have continued with the medicine and in case of withdrawal symptoms, would have simply re-presribed it once again.
Regards

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