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What Causes Extra Cutaneous Mastocytosis?
Question: HI have posted before. I am being treated for asthma, and extracutaneous mastocytosis for past 2 years
low complements c3 c4
take gastrocrom, etc- please see earlier posts. its complicated
have had light colored stools . abdominal bloating, stools are speckled black- looks like ground black pepper throughout poop for last 5 days and allergies bad, stuffy wheezy too - already see comprehensive clinic for food allergies at RUSH in XXXXXXX see GO , immune. etc ophthalmologist, derm...recent purple hands - now see rheum too - scleroderma test so far neg. ? poop concerning - have been trying to get apt at RUSH for 3 weeks - cant reach live person. not sick enough to go to ER . frustrated . is this urgently dangerous for me? I do know my gi tract specimens had 15+aggregated of mast cells throughout colon esophagus, intestines, etc when had egd, colonoscopy 9/2014. sent my GI an email - RUSH is a big place- hard to reach live person sometimes. I feel scared lately - should I go to Mayo clinic or something at this point?
low complements c3 c4
take gastrocrom, etc- please see earlier posts. its complicated
have had light colored stools . abdominal bloating, stools are speckled black- looks like ground black pepper throughout poop for last 5 days and allergies bad, stuffy wheezy too - already see comprehensive clinic for food allergies at RUSH in XXXXXXX see GO , immune. etc ophthalmologist, derm...recent purple hands - now see rheum too - scleroderma test so far neg. ? poop concerning - have been trying to get apt at RUSH for 3 weeks - cant reach live person. not sick enough to go to ER . frustrated . is this urgently dangerous for me? I do know my gi tract specimens had 15+aggregated of mast cells throughout colon esophagus, intestines, etc when had egd, colonoscopy 9/2014. sent my GI an email - RUSH is a big place- hard to reach live person sometimes. I feel scared lately - should I go to Mayo clinic or something at this point?
Brief Answer:
yes, you should go to mayo clinic.
Detailed Answer:
Hello dear, thanks for your question on HCM.
I can understand your situation and problem. Extra cutaneous mastocytosis is something very very unusual. Moreover extracutaneous mastocytosis associated with asthma is even more rarer.
Since you are having GI problem with wheezing, I think you are having worsening underlying mastocytosis. You may need specific therapy for such acute worsening.
Though, the condition isn't urgently dangerous, it is better that you get evaluated early to avoid more problems. So better to consult mayo clinic. There are a lot of research works going on. And premier institutes such as Mayo might have facilities to evaluate this situation and treat you. So I will advice you to consult mayo clinic.
Hope I have solved your query.
I will be happy to help you further.
Wish you good health.
Thanks.
yes, you should go to mayo clinic.
Detailed Answer:
Hello dear, thanks for your question on HCM.
I can understand your situation and problem. Extra cutaneous mastocytosis is something very very unusual. Moreover extracutaneous mastocytosis associated with asthma is even more rarer.
Since you are having GI problem with wheezing, I think you are having worsening underlying mastocytosis. You may need specific therapy for such acute worsening.
Though, the condition isn't urgently dangerous, it is better that you get evaluated early to avoid more problems. So better to consult mayo clinic. There are a lot of research works going on. And premier institutes such as Mayo might have facilities to evaluate this situation and treat you. So I will advice you to consult mayo clinic.
Hope I have solved your query.
I will be happy to help you further.
Wish you good health.
Thanks.
Above answer was peer-reviewed by :
Dr. Prasad
thanks - pulomonologist initially dx me as wheeze and dermatographism , 2 years ago - gi stuff started bad in may 2014 , now just more stuff progressing.
is the "back pepper speckled " looking poop blood ? what else could it be - am i really sick ? dont feel that bad though , just big belly - looks big as i am small 5'3 138 now from steroids on and off - usually 120s
do i need to go to ER at RUSH if I cant get appt?
is the "back pepper speckled " looking poop blood ? what else could it be - am i really sick ? dont feel that bad though , just big belly - looks big as i am small 5'3 138 now from steroids on and off - usually 120s
do i need to go to ER at RUSH if I cant get appt?
Brief Answer:
Yes, it can be blood in stool.
Detailed Answer:
Hello dear, thanks for your follow up question on HCM.
Black pepper looking thing can be due to blood in stool. Since you are not bad enough, you can wait for appointment.
Meanwhile get done stool report for blood.
If this comes positive or your symptoms are persisting then you should not wait for appointment and rush to the Emergency department.
Hope I have solved your query.
If you are not having further queries, then please close the conversation and rate the answer.
Wish you good health.
Thanks.
Yes, it can be blood in stool.
Detailed Answer:
Hello dear, thanks for your follow up question on HCM.
Black pepper looking thing can be due to blood in stool. Since you are not bad enough, you can wait for appointment.
Meanwhile get done stool report for blood.
If this comes positive or your symptoms are persisting then you should not wait for appointment and rush to the Emergency department.
Hope I have solved your query.
If you are not having further queries, then please close the conversation and rate the answer.
Wish you good health.
Thanks.
Note: For further information on diet changes to reduce allergy symptoms or to boost your immunity, Ask here.
Above answer was peer-reviewed by :
Dr. Bhagyalaxmi Nalaparaju
Answered by
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