Question: Hello:-). My son is 14 years and can barely walk. He walks out of necessity from point "A" to point "B". We were in a motor vehicle accident in 12/2010. His gross motor has deteriorated, fine motor, sensory have all progressively deteriorated. He developed new onset crouching, keeps legs bent whether sitting or standing and even places feet on potty to urinate, bowel movement. Eats soft foods, dysphagia as well as his speaking, articulation has near diminished. Bowel, bladder problems have been anuria, oliguria, frequency, hesitancy, dark maroon urine, urinates only every 24 - 48 hours, currently. Has had chronic pain which seemed to have began in shoulders, neck, head. Then crouching, foot flapping while ambulating. He used to run faster than most of us, jump on trampoline, climb, swim....now he sits with great difficulty and discomfort, keeps knees bent while supine, keeps legs drawn close to trunk of body, ambulated bent at waist approximately 10-35 degrees, unsteady, clumsy, nearly falling every time. He has MRI imaging. Brain, total spine with and without contrast, flow studies from 3/2012, 12/2012, 2/2013, 4/2015, 6/2015. Would you please evaluate his imaging?

I am not a computer geek, so I want to be able to send my mri's to an email. Is that possible? I have them ready if you would provide me an email. Thanks,
XXXXXXX L. XXXX:-)


https://xmri.YYYY.com/worklist/


YYYY@YYYY and password XXXXX

That is username and password to access all the MRI studies to the link I sent above. I hope this will be ok with you.

Thank you, Dr. Panwar. I appreciate your professional opinion and considerable time.

I would like to ask you if perhaps a surgeon is able to review imaging, as well? Things to question: Schmorl's Nodes? Cerebellar Tonsillar ectopi? Kypohosis, scoliosis? Perhaps observe muscular issues such as myositis on mri?

Especially considering Transverse Myelitis: XXXXXXX HAS ALL OF THE SYMPTOMS OF TM: WEAKNESS LEGS AND ARMS, SENSORY ALTERATIONS; TOUCH, VISUAL, NUMBNESS/TINGLING, CHRONIC AND ACUTE EPISODES OF PAIN WITHIN ALL LEVEL OF HEAD AND SPINE, BOWEL AND BLADDER DYSFUNCTION INCLUDING OLIGURIA, ANURIA, HESITENCY, FREQUENCY, UNABLE TO CATHETERIZE HIS FULL bladder in ER and was not able to void for 46 hours. No history of UTI. Urinates only every 24-48 hours, history of constipation and or episodes of loss of control over bowel.

He has a significant medical history including a systemic yeast infection, rashes, especially a rash on palms and fingers of both hands for a year and a half. Reddened, inflammed, rash with skin spliting open in slits. He had a three-prong rash shaped in a triangle in two areas of his body, simultaneously and unknown etiology. The rash on hands eventually became a mechanic's hands rash and finally healed after initiating low-dose naltrexone(Low dose) cream applied after asleep. This supported strengthening his immune system. He then had to stop the cream because he went on valium. Valium kept XXXXXXX from being hospitalized repeatedly for sevee pain, dehydration, weight loss, allowed him to eat and drink without pain.


Significantly, XXXXXXX has a very real deterioration in physical mobility. Seems to be neurological and immunological. Issues such as numbness, tingling, pain, difficulty verbal speech articulation, opening closing jaw, keeping legs drawn up, bent at knees, toward his torso. knees always bent, whether ambulating, supine in bed, sitting on toilet with feet flat on toilet seat. He had awesome physical gross motor abilities, prior to the onset of the physical deterioration he has been experiencing, quite noticeably with the onset beginning end of 2010. Difficulty swallowing, using total body effort, anxiety, and gross motor movement to swallow food. Hitting his chest while eating frequently. He has had pain, chronic.
XXXXXXX USED TO SWIM, RUN FASTER THAN MOST OF US, CLIMB SWIM, SIT, SPEAK, JUMP ON TRAMPOLINE,ETC...


24 HOUR DAY FOR XXXXXXX IS EITHER BED-RIDDEN OR SITTING AS I DESCRIBED PREVIOUSLY. QUALITY IS MISSING. COMFORT IS MISSING. DIAGNOSIS IS MISSING. XXXXXXX IS 14 YEARS OLD.

IF YOU HAVE ANY RESOURCES TO DIRECT ME OR GUIDE ME, MAKE RECOMMENDATIONS, ASK A PEER, A COLLEAGUE, AN ATTENDING, WOULD YOU PLEASE HELP?

THANK YOU,
XXXXXXX L. XXXXX


I am glad you noted the bulging discs. Actually, with his neurological issues of difficulty ambulating, sitting, standing, keeping legs drawn to trunk of body, numbness and tingling. And, when he began a deterioration in 2010, he had foot flapping while ambulating, unsteady gait, slight bending at waist while walking, abdominal pain, especially low back pain and also upper back pain. he seems to keep drawn up physically. The physical therapist diagnosed tight hamstrings in 2/2014. Given that he has bowel and bladder history which coincides with the onset of this pain, mobility issues, and sensory deficits of numbness and tingling, pain, pain changing positions from sitting to standing, standing, climbing stairs, especially changing positions from sitting to lying supine became excruciating at night for bed. Certainly, there must be a method to measure depth of spinal cord compression. which discs are bulging? This is certainly a large piece to the puzzle of his physical condition.


Dr. Panwar,

I thank you so very much. I am so grateful for your generous help. You really have made a huge difference in Blake's life and our family.

Sincerely,
XXXXXXX L. XXXX

If you have any recommendations whatsoever, I would embrace them for consideration to help my son, XXXXXXX

Thank you, thank you:-)