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How Long Do Children With Adrenoleukodystrophy Tend To Live?
Hi there! I'm doing a report for my biology class, and I could not find the answer to my question anywhere. I thought that you might be able to help me. How long do children with Adrenoleukodystrophy tend to live? Can males with this disease live to pass on their affected genes to their children?
Fri, 27 Jun 2014
Hi,
Thanks for writing in.
There is a lot of variability between the age of onset of problems, the rate of the disease progression, and the life expectancy even in the same family. Some boys or young men may live into mid-late teens and beyond, many are likely to be in a state of unresponsiveness within a few years, or even months, of the onset of symptoms. Those whose onset of symptoms occurs between the ages of three and ten years tend to have a more rapid decline than those whose onset is later and may not live till adulthood.
Thanks for writing in.
There is a lot of variability between the age of onset of problems, the rate of the disease progression, and the life expectancy even in the same family. Some boys or young men may live into mid-late teens and beyond, many are likely to be in a state of unresponsiveness within a few years, or even months, of the onset of symptoms. Those whose onset of symptoms occurs between the ages of three and ten years tend to have a more rapid decline than those whose onset is later and may not live till adulthood.
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