My daughter has symptoms of acute intermittent porphyria, her immunologist tested for porphyria but not during an acute attack. My understanding is tests are often normal between attacks. But he immunologist says there is no reason to retest. We can easily trigger an attack, 2 know porphyria triggers cause her to get very sick, lack of carbs and the chemical used in making ceramics. I don t know if we should see another doctor or look for a different diagnosis.