Hi,

Thanks for writing to health care magic.

I think he is a steroid dependent case of nephrotic syndrome.

Those medications are required to prevent a relapse.

You should consult a pediatric nephrologist and follow the treatment as advised.

Continue to ask further queries as required.
Hope this helps.
Take care.

Thanks for query here at Healthcaremagic.

I understand your and your parents concerns about long-standing nature of the disease, without much clinical improvement despite multiple medications.

In this situation, it is advisable to see Pediatric Nephrologist (Pediatric Kidney Doctor). I don't know whether Dr Khemchand Moorani is a kidney specialist or not. I would suggest a kidney biopsy to find out the nature of the disease and adjusting treatment based on biopsy and blood reports.

It is quite possible that he is suffering from a severe form of Nephrotic Syndrome, wherein kidney function continue to deteriorate till the stage of kidney failure and needing kidney replacement therapy.

Please consult a good Pediatric Nephrologist in his care.

Regards
DR Tejas Shah
Critical Care Specialist

Hi friend,
Welcome to Health Care Magic

Sorry to say this - but he will need life long medication.
With proper medication, deterioration of renal function can be retarded
There is practically no chance of complete cure / a time may come, when he may need dialysis
Renal Transplant may an option at one stage
Discuss with Nephrologist...

Take care
Wishing speedy recovery
God bless
Good luck