Sign-in to Ask A Doctor - 24x7
OR
Sign in with GoogleGet your health question answered instantly from our pool of 18000+ doctors from over 80 specialties
Suggest Diet Plans For Dense Deposit Disease
I RECENTLY HAVE CUSTODY OF MY STEP DAUGHTER WHO ALSO JUST HAS BEEN DIAGNOSED WITH DENSE DEPOSIT DISEASE IM TRYING TO FIGURE OUT WHAT FOODS AND DRINKS SHE SHOULD EAT OR NOT EAT WHAT KIND OF MEDICATIONS I CAN AND CANT GIVE HER LIKE TYLENOL ECT. AND HOW MUCH WATER SHE SHUD DRINK AND HOW OFTEN SHE SHE PEE.
Thu, 30 Jun 2016
Sir,
Dense Deposit Disease is a rare kidney disorder and the diet should be individualized by a dietitian to provide the information you ask.
For now, assure that at least half of her protein intake be of vegetarian origin if not already vegetarian.
There is no proven treatment or standard diet. Diet should be based on similar diets for glomerulonephritis.
We know that sodium restriction to 1500 mg to 2300 mg per day may help. It helps reduce the amount of fluid the kidney needs to filter.
Is your stepdaughter on Eculizumab? This med is often used until dialysis becomes necessary.
Again I suggest a referral to a Dietitian for an individualized diet for this rarest of rare disorders.
Regards,Kathryn Shattler, MS,RDN
Dense Deposit Disease is a rare kidney disorder and the diet should be individualized by a dietitian to provide the information you ask.
For now, assure that at least half of her protein intake be of vegetarian origin if not already vegetarian.
There is no proven treatment or standard diet. Diet should be based on similar diets for glomerulonephritis.
We know that sodium restriction to 1500 mg to 2300 mg per day may help. It helps reduce the amount of fluid the kidney needs to filter.
Is your stepdaughter on Eculizumab? This med is often used until dialysis becomes necessary.
Again I suggest a referral to a Dietitian for an individualized diet for this rarest of rare disorders.
Regards,Kathryn Shattler, MS,RDN
I find this answer helpful
Sir,
Your step-daughter's disease is considered one of the rarest of rare diseases. There is no set diet. I highly suggest you see a qualified Dietitian so a diet can be individualized for her.
In general she should probably be limiting her sodium intake to 1500-2300 mg/day. You cannot tell her hydration level by the color of her pee because her disease will discolor the urine anyway. The sodium restriction will help with fluid retention and ease the work on the kidneys.
Although this disease affects other parts of the body, it is similar to a form of glomerulonephritis or kidney disease. Since each person is individual in their needs for phosphorous, potassiuim and protein restriction, a Dietitian should be involved. And, these needs will change if dialysis enters the picture.
Her protein intake should be of high biological quality, but limited to about .8 grams/kg body weight. High biological quality means "complete proteins" which, again,the types and amounts will depend upon whether the diet is vegetarian or if meat is consumed.
Oral calcium supplements (1 g/day) and vitamin D (400-800 IU/day) are recommended for prophylaxis against osteoporosis in glomerularnephritis, but check with your doctor first. Dietary treatment for Dense Deposit Disease frequently follows the guidelines for the glomerularnephritis (kidney) diet.
Fluid recommendations, defer to personal physician. Frequently fluids are limited but whether the doctor wants input/output records is a question. You want to avoid dehydration as well.
Good Luck. Regards, Kathryn Shattler, MS,RDN
Your step-daughter's disease is considered one of the rarest of rare diseases. There is no set diet. I highly suggest you see a qualified Dietitian so a diet can be individualized for her.
In general she should probably be limiting her sodium intake to 1500-2300 mg/day. You cannot tell her hydration level by the color of her pee because her disease will discolor the urine anyway. The sodium restriction will help with fluid retention and ease the work on the kidneys.
Although this disease affects other parts of the body, it is similar to a form of glomerulonephritis or kidney disease. Since each person is individual in their needs for phosphorous, potassiuim and protein restriction, a Dietitian should be involved. And, these needs will change if dialysis enters the picture.
Her protein intake should be of high biological quality, but limited to about .8 grams/kg body weight. High biological quality means "complete proteins" which, again,the types and amounts will depend upon whether the diet is vegetarian or if meat is consumed.
Oral calcium supplements (1 g/day) and vitamin D (400-800 IU/day) are recommended for prophylaxis against osteoporosis in glomerularnephritis, but check with your doctor first. Dietary treatment for Dense Deposit Disease frequently follows the guidelines for the glomerularnephritis (kidney) diet.
Fluid recommendations, defer to personal physician. Frequently fluids are limited but whether the doctor wants input/output records is a question. You want to avoid dehydration as well.
Good Luck. Regards, Kathryn Shattler, MS,RDN
I find this answer helpful
Disclaimer: These answers are for your information only and not intended to replace your relationship with your treating physician.
This is a short, free answer.
For a more detailed, immediate answer, try our premium service
[Sample answer]
Related questions you may be interested in
Recent questions on Tylenol
Loading Online Doctors....