Was treated at age 6 months and diagnosed with FMF. New oncologist believes that I have LCH disease. right lower lung is collapsing, lymph nodes all over body, spince is curving, blood work not good. Lesions found by dermatologist , he removed 5 and said he though oncologist was right, however the lesions came back negative. Does that mean I do not have LCH disease at all, or just not on skin. Very nervous. Can you tell me if this is good or bad. I am 24 years old. This came up as a free consult, do not have money to pay for answer.