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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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What Causes Blue Rubber Bleb Nevus Syndrome And How To Cure It?

Hello ,My son is 5 y.old ,was diagnos with Blue Rubber Bleb Nevus Syndrome,is as some under is foot,in in neck ,2 in is liver and maybe in is instestine ,we just find out ,we are going to all kind of test to see where else he as some,We live in Ottawa area in Canada ,and it seem to me no one know about that rare illness,please can you help me to find some specialist in canada or else to see what can we do about it,I do not like the fact that is as some on is liver should we remove it or not ???I know that there is no cure ,but there must be ways to help to control it .
Wed, 12 Apr 2017
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General Surgeon,  's  Response
Respected Sir, hi sorry to hear about your issue. Sir, there are high chances of bleeding better not to think about surgery on liver. what at all you can do is :* avoid any type of trauma / injury to the affected part * maintain hydration of him * deep breathing exercises and YOGA 20-30 minutes daily will help to improve microcirculation of the vessels as well as gut vessels to get more oxygenation.*as we know no cure ,be courageous and let him also be more courageous let him play, laugh, have fun , enjoy life on his own because ultimate destiny God has decided when he has been sent on this earth dear thanks regards bye take care wishing him happy healthy life ahead.
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What Causes Blue Rubber Bleb Nevus Syndrome And How To Cure It?

Respected Sir, hi sorry to hear about your issue. Sir, there are high chances of bleeding better not to think about surgery on liver. what at all you can do is :* avoid any type of trauma / injury to the affected part * maintain hydration of him * deep breathing exercises and YOGA 20-30 minutes daily will help to improve microcirculation of the vessels as well as gut vessels to get more oxygenation.*as we know no cure ,be courageous and let him also be more courageous let him play, laugh, have fun , enjoy life on his own because ultimate destiny God has decided when he has been sent on this earth dear thanks regards bye take care wishing him happy healthy life ahead.