I have been diagnosed with probable Ehlers Danlos II by a geneticist. The Col 2, 3 and 5 were not ... related to Parkinson's or other movement disorders. They are not familiar with Ehlers Danlos... View answer

[I have EDS, probably hypermobility, with Atrophic scars . I'm in St. Pete Florida, and nobody has heard of it. Do you have any suggestions on how to find a Doctor? I'm willing to travel if necessary. Thanks ] View answer

I am looking for a doctor in the New York City area with experience treating Ehlers Danlos Syndrome (EDS). I have found numerous rheumatologists listed but I am pretty certain that not all of them... View answer

I am a 33 year old male with Ehlers Danlos Syndrome Classic/Hypermobility type (non vascular) However i do have an enlarging aorta . In feb 2010 it was 3.0 and now is 3.5. My question is, is it safe ... View answer

I am a 33 year old male with Ehlers Danlos Syndrome Classic/Hypermobility type (non vascular) However i do have an enlarging aorta . In feb 2010 it was 3.0 and now is 3.5. My question is, is it safe ... View answer

its a norm, some were concerned but couldn t tell what is wrong exactly. Recently I heard about ehlers-danlos syndrome and I m wondering - could this be it? I m worried because as I get older I seem... View answer

been diagnosed with Ehler s Danlose Syndrome (sp) - how severe is this? Waiting on MRI results. Thank ... View answer

My younger sister (56, I am 58) has multiple myeloma, in addition to Ehlers-Danlos, fibromyalgia ... addict before the cancer diagnosis. What are the chances I might also have or develop... View answer

I have Ehlers Danlos Syndrome. So I m having problems with my right eye. If I cover my left eye my right eyes vision shakes. I have moderate pain going around my iris. It started at the right... View answer

I am looking for a doctor that specializes in ehlers-danlos syndrome. it s diagnosis as well as treatment if there is such a thing. very frustrated. my daughter, 23 yrs old is diagnosed with EDS. No... View answer