In September 1986 my wife (born 31 March 1937) was diagnosed to have Acute Intermittent Porphyria . Since then we ar living with this situation as shown in the chronicle attached. In the beginning of... View answer

autoimmune disorder (metabolic/ mitochondrial is more succinct) called Acute Intermittent Porphyria . I can ... View answer

concerned because: 1. I have Acute Intermittent Porphyria , which I know increases my risk of liver cancer 2 ... View answer

I was tested for Porphyria in October of 2015. The specimen was a 24 hour urine collection that they had to repeat 3 times because they did not handle it properly. My labs were explained to be highly ... View answer

porphyria and have to have phlebotomy treatments at Ferritin above 50. 143 is the highest I've ever been. Today, my ALT measured at 68. It was 32 in December 2015. People with porphyria are at high risk of ... View answer

My daughter has symptoms of acute intermittent porphyria, her immunologist tested for porphyria but ... immunologist says there is no reason to retest. We can easily trigger an attack, 2 know... View answer

hi, maybe you can help me a little faster than me trying to research this online. i have acute intermittent porphyria. lately i have been having major issues regulating my body temperture. im... View answer

Hello Dr. Samuel, I am Gunja, 29 yrs old and I was diagonised with Acute Intermittent Porphyria (AIP) 2 years back in 2012. I had 7 AIP attacks so far. I wanted to know whether pregnancy is safe in ... View answer

clear, urine and blood tests have shown nothing. She is not constipated or the other way. .She has acute intermittent porphyria and we are awaiting a PBG test. Seeing a doc tonight so any suggestions... View answer

. aCUTE INTERMITTENT PORPHYRIA IS NICKNAMED THE CRAZY MANS DISEASE. I PREVENT ATTACTS FROM EATING CARBS ...I AM A 60 YR OLD FEMALE WITH PORPHYRIA AND SARCOID. AFTER 45 YRS MY HUSBAND NO LONGER... View answer