HealthCareMagic is now Ask A Doctor - 24x7 | https://www.askadoctor24x7.com

Get your health question answered instantly from our pool of 18000+ doctors from over 80 specialties
159 Doctors Online

By proceeding, I accept the Terms and Conditions

Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

HCM Blog Instant Access to Doctors
HCM BlogQuestions Answered
HCM Blog Satisfaction

Suggest Management For Goldenhar Syndrome

Hi..i want to know what can be done for newborn with symptoms of goldenhar syndrome..The nose is blocked, with heart failure and kidney problem and possibly underdevelop brain too..he was born 7 days ago..is there any possibility of hope for the baby? please do help. thank you so much
Mon, 7 May 2018
Report Abuse
Pediatrician 's  Response
Hello,
As you are aware Goldenhar syndrome can be associated with abnormalities of the face as well as internal organs. Which abnormalities an infant has varied from patient to patient. Reconstructive surgeries can correct malformed facial features. Surgical operations are usually spread out over months or years(depending upon what needs to be repaired).

Has your son had any brain imaging? If he does have a brain problem, it is imperative that he be evaluated by a pediatric neurologist and a developmental pediatrician as soon as possible. They will want to follow him as he grows, also. The national organization in USA known as FACES can refer you to a Craniofacial Center near where you live. These centers have experienced physicians who can give him the proper treatment. They can also provide you with contact information of families who have a child with the same diagnosis as yours. Congratulations on the new addition to your family. Many babies with Goldenhar's can grow up to have a normal lifespan.

Hope I have answered your query. Let me know if I can assist you further.

Regards,
Dr. Arnold Zedd
I find this answer helpful

Note: For further queries related to your child health, Talk to a Pediatrician. Click here to Book a Consultation.
Disclaimer: These answers are for your information only and not intended to replace your relationship with your treating physician.
This is a short, free answer. For a more detailed, immediate answer, try our premium service [Sample answer]
Share on
 

Related questions you may be interested in


Recent questions on Congenital disorders


Loading Online Doctors....
Suggest Management For Goldenhar Syndrome

Hello, As you are aware Goldenhar syndrome can be associated with abnormalities of the face as well as internal organs. Which abnormalities an infant has varied from patient to patient. Reconstructive surgeries can correct malformed facial features. Surgical operations are usually spread out over months or years(depending upon what needs to be repaired). Has your son had any brain imaging? If he does have a brain problem, it is imperative that he be evaluated by a pediatric neurologist and a developmental pediatrician as soon as possible. They will want to follow him as he grows, also. The national organization in USA known as FACES can refer you to a Craniofacial Center near where you live. These centers have experienced physicians who can give him the proper treatment. They can also provide you with contact information of families who have a child with the same diagnosis as yours. Congratulations on the new addition to your family. Many babies with Goldenhar s can grow up to have a normal lifespan. Hope I have answered your query. Let me know if I can assist you further. Regards, Dr. Arnold Zedd