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Dr. Andrew Rynne
MD
Dr. Andrew Rynne

Family Physician

Exp 50 years

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Suggest Tests To Confirm MADSAM Neuropathy

Struggling 4 years with progressive sensory small finer neuropathy. Pain acute n chronic in feet and both legs. Many many neurological work ups. Latest diagnosis is MADSAM concluded by 2 different neurologists. How can I be sure before beginning IVG treatment.? Symptoms have been progressing
Fri, 29 Dec 2017
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Neurologist,  's  Response
Hello!

Welcome on HCM!

I read carefully your question and understand your concern.

You should know that the main tests for this disorder are the electroneurography and spinal tap, followed by the exam of the cerebrospinal fluid.
Other tests to consider are blood work to exclude any other systemic conditions (complete blood count, sedimentation rate, ANA, ANCA, Rheumatoid factor, genetic testing for Charcot Marie Tooth disease, etc.).

Anyway, treatment with IVG can help distinguish between the other causes of neuropathy.
So, if you have already performed some blood lab tests, an electroneurography and a spinal tap, I would strongly encourage you to start IVG therapy.

Hope you will find this answer helpful!
Best wishes, Dr. Aida
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Suggest Tests To Confirm MADSAM Neuropathy

Hello! Welcome on HCM! I read carefully your question and understand your concern. You should know that the main tests for this disorder are the electroneurography and spinal tap, followed by the exam of the cerebrospinal fluid. Other tests to consider are blood work to exclude any other systemic conditions (complete blood count, sedimentation rate, ANA, ANCA, Rheumatoid factor, genetic testing for Charcot Marie Tooth disease, etc.). Anyway, treatment with IVG can help distinguish between the other causes of neuropathy. So, if you have already performed some blood lab tests, an electroneurography and a spinal tap, I would strongly encourage you to start IVG therapy. Hope you will find this answer helpful! Best wishes, Dr. Aida