[Hi my son having LCH from birth. Liver spleen and lung involvement.Now 1 year 10 months old. We have diagnised and treated with vinblastine and prednisolone initally. It was partially responded. After one year of... View answer

I was just told this week that I have sinus histiocytosis with hemosiderosis . I am a nurse but have never heard of this disease and want more information. Specifically why does it have to be treated ... View answer

, they said he didnt have histiocytes, which is found in histiocytosis . he was seeing a neurologist for severe headaches . so could this be a form of histiocytosis. ... View answer

hi doc , my mother 63 yrs old recently had an excision biopsy for a lump at upper back . she had no pain or other constitutional symptoms. biopsy was reported as histiocytosis with marked lymphadenopathy ... View answer

Hello, I have a bit of an unusual situation. I have Histiocytosis X. It has affected multiple organs in my body in harsh ways over the years. I just went through Lumbar Facet injections this past ... View answer

My daughter was diagnosed with histiocytosis at two months of age and had a growth removed she is now 18 and I feel she is having some symptoms like weight loss, loss of appetite, vomiting, etc I live ... View answer

[Was treated at age 6 months and diagnosed with FMF. New oncologist believes that I have LCH disease. right lower lung is collapsing, lymph nodes all over body, spince is curving, blood work not good. Lesions found by... View answer

was diagnosed with Langerhan Cell Histiocytosis, both tumors in her head. She was treated with IMRT .... Could this be related to histiocytosis? Does histiocytosis attack the throat? ... View answer

I have previously been diagnosed with histiocytosis with massive lymphadenopathy. I have also ... is, could all my symptoms be related or is each separate? If related what else will I have to look ... View answer

I have been diagnosed with Pulmonary histiocytosis LCH. My husband just recently tested positive through a blood test for tb. he has no other symptoms than a occular tumor. We are in the middle of ... View answer