Fabry Disease Dry Syndrome

I have an implanted morphine pump and am also taking dilaudid for my Fabry disease pain. If I run out of dilaudid, I get massive diarreha for days. I also have a pilonidal cyst that bleeds and drains ... View answer

a sign of down syndrome..is it true? till now none of the doctors told us that she has any sign of down syndrome my question is how to detect down syndrome after baby is born? is sticking tongue out ... View answer

I have Klein-Levin Syndrome or Sleeping Beauty Syndrome. I need help staying awake, any suggestions please. ... View answer

is paraneoplastic syndrome only caused by Cancer in the body or can you have the syndrome without having cancer? ... View answer

Is there any connection between the drug Ropinirole, taken for Restless Leg Syndrome , and Myelodysplastic Syndrome where the bone marrow fails to produce platelets? ... View answer

Regarding Fabry Disease, one of the common treatments is to have timely infusions of agalsidase beta . I have heard that a Fabry Disease Association in the State of Washington now has a pill or ... View answer

We are a family with fabry disease, which is deficiency in Alpha- galactosidase A. I have persistant runny nose and skin patches that different doctors diagnosed differently. some said it is eczema ... View answer

my husband has fabry disease. he has had at least 3 episodes of blood clots- 2 as teenager, one 12 yrs ago, and now he is exhibiting signs again. an ultrasound 2 wks ago was negative. He is complaining ... View answer

I am 66 and in very good health; my wellness test results are great. I also have Fabry disease and I receive infusion every 2 weeks.I do not like needles but I use numbing cream and the nurses spray ... View answer

I m a 60 year old female, 2 yrs ago I was diagnosed with Siogren s Syndrome, 710.2 & 714.0-where can I go to be tested for the spilling gut syndrome, my PCP & RA M.D. has never heard of this test ... View answer